Thursday, March 31, 2011

Done being Broken..

i just want to be a normal 22 year old! im sick of not being able to go out and do what i want and drive my new 2010 fusion that i pay for and cant drive im sick of this..... i dont want to live like this any more! im stuck in this house all of the time and cant do anything without help from someone.. im so tiered of being broken. =[

Wednesday, March 23, 2011

Hope is all thats Left...

I've been robbed 
robbed of my dreams
robbed of my hopes
robbed of my life 
everything changed in that moment
that moment he spoke the words You Have MS

I just try and hold everything together 
as i'm robbed of my life 
broken down into nothing 
waiting for the cure 

I try and build up the courage 
to look at myself 
and say it will be ok 
as im restless and stumbling like a drunk 
my legs are like Jello 
my fingers i haven't felt in a year
always the question in the back of my head 
what will tomorrow hold for me..... Hope is all i can do......

Monday, March 21, 2011

of Course.....

so i woke up this morning and i get up to go to the bathroom and i stand up hold on to the dresser and it feels like there is a knife being stabbed through the bottom of my foot! i haven felt this much pain in a long time.. so the pain is still there its a little more tolerable now but still driving me crazy ugh just thought i would tell my story....

Sunday, March 20, 2011

Head above water I refuse to sink

just wanted to do a post about my tattoo i have half of it now i have to go get the other side done.. i'm excited, because its me standing up and refusing to let MS take over my life.. 


Just wanting my Independence back. to be able to take care of my self again would be great...
i hate when things start to get to me and i start to think about what i use to be able to do like drive, walk around the mall, be able to have a beer with out pissing my pants, shower normally.. wow.. you honestly don't know what you have until its gone...
i would honestly rather be totally numb on my whole body then no be able to walk...

so im trying to quit smoking its day 3 n i have had 3 cigarettes im going to try and have no cigarettes  tomorrow, wish me luck..

well ill update more later xox Tiffany

Tuesday, March 15, 2011


Hello, im Tiffany. im new here so i just want to do a lil background story.. 

It was August the summer of 09 and i was at my sisters graduation party and was experiencing some numbing in my feet and legs so any ways by the next day i was being carried into the car because i was unable to walk on my own. So my mother took me to the hospital and they ran a tons of tests on me and 4 days later came to the conclusion i had MS. This was one of the saddest/hardest days of my life. my life changed from that point on.. 
i have never fully recovered from that first episode, my balance has never fully came back, my knees are now locking and popping, bladder is always wanting to empty, toes and fingers are always numb.

so now 2 years later i am on rebif and looking into stem cell therapy.. i don't really know that much about it but on April 5 & 6 i will be going to Chicago to meet the doctors and have an MRI to see if they will approve me for this study.. i feel like this will be one of the biggest decisions i have ever made..

well that's a little bit of background and a little update for you guys